White Paper Makes Recommendations to FDA for Improving Rare Disease Clinical Trials
May 6, 2013Being diagnosed with a rare disease such as neuroblastoma brings many challenges to the affected individual and their families, none more so than the search for an effective drug treatment. The research foundation Parent Project Muscular Dystrophy has addressed this issue head on by developing a white paper, ‘Putting Patients First’, which offers recommendations developed
Childhood Cancer ‘Dream Team’ Forms, Headed By Dr. John Maris
April 9, 2013Stand Up To Cancer (SU2C) and the St. Baldrick’s Foundation, along with the American Association for Cancer Research (AACR), SU2C’s scientific partner, announced the formation of a Dream Team dedicated to childhood cancer research. The announcement was made during a press conference yesterday at the AACR Annual Meeting 2013, held in Washington, D.C., April 6-10.
Uniting Forces to Cure Cancer: Time Magazine Highlights Importance of Collaboration; WGFRF Spearheads Consortium of Neuroblastoma Foundations
March 25, 2013In 2013, over half a million people in the US alone will die from cancer, and 1.7 Million new cases will be diagnosed. This week’s Time magazine features an eye catching cover: ‘How to Cure Cancer’. The featured story looks at how collaboration and sharing knowledge is accelerating cancer research progress. The theme of collaboration has inspired
INRGdb Progress Report
March 18, 2013The Interactive International Neuroblastoma Risk Group (INRG) Database (db): 2nd year progress report Project Description/ Purpose: The overall goal of this project is to develop a web-based, Interactive International Neuroblastoma Risk Group database (iINRGdb) that will facilitate international, multi-institutional, interdisciplinary research in childhood neuroblastoma, advance our understanding of the pathogenesis of this neoplasm, and ultimately
